How to have an M.E. gathering

I love meeting up with my M.E. friends and have been to gatherings large and small.  Here is a list of things to consider when planning a spoonfest!

·        Take regular breaks, plan when to stop and rest at the begging and stick to it!

·        If not everyone wants to rest each time, that is ok but make sure you work around everyone's base line.

·        Think about numbers

-Too many may be too tiring and loud.  

-If you want to have a large gathering over-invite, expect people to drop out last minute.

-Three people works really well, one person can be resting while the other two chat.

·        If you are under age, or will be meeting people who are under age, think about safety make sure that there is a trusted adult near buy.

·        If you are meeting someone you have not met before, bring a friend and meet in a public place.

·        Think about length of time, if people are travelling long distances it is not worth meeting for only a short time, but a meeting that is too long will cause unplanned payback.

·        Think about dietary requirements, people may have intolerances.

·        Think about accessibility 

-Allow for walking sticks and wheelchairs.

-Provide a separate room for resting

-Make sure the entrances to buildings are accessible and that there is a downstairs toilets. 

-How will people get there? Is there a train station near buy, parking?

Me and Sarah, my spoonie friend