tag:blogger.com,1999:blog-121410870358314235.post3493118598567386094..comments2019-09-13T00:41:47.739+01:00Comments on Jenny Helen, my spoonie life: What is M.E? Confusion with terminologyAnonymoushttp://www.blogger.com/profile/07897707362559047754noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-121410870358314235.post-3752594097457824222015-01-04T20:05:39.981+00:002015-01-04T20:05:39.981+00:00I have Fibromyalgia so it's quite different bu...I have Fibromyalgia so it's quite different but I can relate a little bit to what you're saying as so many people don't understand Fibro at all or have never heard of it. The most frustrating thing I find is when people try to say they have Fibro when they clearly don't, I don't mean that in a horrible way but I think it gets thrown around too much and people self diagnose themselves when they're actually just tired and it makes them undermine how much of an awful illness it actually is if that makes sense. I had a situation at work recently where I just wanted to cry because people were treating it like a hypochondriacs illness and it really isn't :(<br />Really pleased to have found your blog and I look forward to more posts in this series :)<br />Love Holly x<br /><br />www.thehollydays4.blogspot.co.ukHollyhttps://www.blogger.com/profile/04629352236291577767noreply@blogger.comtag:blogger.com,1999:blog-121410870358314235.post-81250245885512500512014-12-07T23:20:00.293+00:002014-12-07T23:20:00.293+00:00Hehe thanks Faye! To be honest with you I hadn'...Hehe thanks Faye! To be honest with you I hadn't really realised there was a difference between the two terms until recently, and if I didn't notice after 7 years, it must be even more difficult for non-sufferers to notice! :)Anonymoushttps://www.blogger.com/profile/07897707362559047754noreply@blogger.comtag:blogger.com,1999:blog-121410870358314235.post-68732523523353750102014-12-07T17:23:47.204+00:002014-12-07T17:23:47.204+00:00That's so funny that people misread that Faceb...That's so funny that people misread that Facebook status, Jenny. I agree that Myalgic Encephalopathy seems a better description. It's no wonder people have such a hard time understanding the condition when even the name is goes by is so confusing!<br />Faye<br />www.freckles-and-all.comFaye Savoryhttps://www.blogger.com/profile/05961682678433685723noreply@blogger.com